Links to SCI Resources on the Internet
- The 14 Model SCI System Centers
- SCI organizations and information
- SCI cure and recovery information
- SCI and disability publications
- Medical complications of SCI
- SCI research
- SCI sites written and maintained by individuals with SCI
- Listservs for individuals with SCI
- International SCI sites
- Disability Web sites
- Other resources
The 14 Model SCI System Centers
- UAB Model Spinal Cord Injury Care System
University of Alabama/Birmingham.
http://www.spinalcord.uab.edu - The Rocky Mountain Regional Spinal Injury System
Craig Hospital, Englewood, CO
http://www.craighospital.org/Research/SCIModelsystems.asp - National Capital Spinal Cord Injury Model System
National Rehabilitation Hospital |MedStar Research Institute, Washington, DC
http://www.ncscims.org - Georgia Regional Spinal Cord Injury Care System
Shepherd Center, Inc., Atlanta, GA
http://www.shepherd.org/research/model.asp - Midwest Regional Spinal Cord Injury Care System (MRSCIS)
Rehabilitation Institute of Chicago., Chicago, IL
http://www.northwestern.edu/spine/ - The New England Regional Spinal Cord Injury Center
Boston University Medical Center Hospital, Boston, MA
http://www.bumc.bu.edu/Dept/Content.aspx?DepartmentID=91&PageID=332 - University of Michigan Model Spinal Cord Injury Care System
Ann Arbor, MI
http://www.med.umich.edu/pmr/modelsci/index.htm - Northern New Jersey Spinal Cord Injury System
Kessler Medical Rehabilitation Research and Education Corporation (KMRREC)
West Orange, NJ
http://www.kmrrec.org/nnjscis/ - Mount Sinai Spinal Cord Injury Model System
Mount Sinai School of Medicine, New York, NY
http://www.mssm.edu/rehab/spinal/ - Northeast Ohio Regional Spinal Cord Injury System
MetroHealth System, Cleveland, OH
http://www.metrohealth.org/body.cfm?id=346&oTopID=345 - Regional Spinal Cord Injury Center of the Delaware Valley
Thomas Jefferson University, Philadelphia, PA
http://www.spinalcordcenter.org/ - University of Pittsburgh Model Center on Spinal Cord Injury
Pittsburgh, PA
http://www.upmc-sci.org/ - Texas Model Spinal Cord Injury System
The Institute for Rehabilitation and Research (TIRR)
Houston, TX
http://www.texasmscis.org - Northwest Regional Spinal Cord Injury System
University of Washington, Seattle WA
http://sci.washington.edu
SCI organizations and information
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SCI Information Network (University of Alabama)
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Christopher Reeve Paralysis Association (A merger of the American Paralysis Association and the Christopher Reeve Foundation)
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Paralyzed Veterans of America (PVA) (not just for veterans)
- United Spinal Association—for all Americans with spinal cord impairment (formerly Eastern Paralyzed Veterans Association)
SCI cure and recovery information
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International Center for Spinal Cord Injury at Kennedy Krieger Institute
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Institute of Medicine: Spinal Cord Injury - Strategies in Search for a Cure
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International Campaign for Cures for Spinal Cord Injury Paralysis (ICCP) - information about clinical trials in SCI and downloadable guidelines for persons considering participation in experimental treatments for SCI.
SCI and disability publications
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360 Magazine—monthly e-zine for the wheelchair community
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Disability World—Web-zine of international disability news and views, in Spanish and English.
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New Mobility - "The disability lifestyle magazine"
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Paralinks - Electronic magazine for people with SCI
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Paraplegia News—published by Paralyzed Veterans of America.
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Pushin' On (newsletter of the SCI Information Network)
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Ragged Edge—Disability Rag's Online Magazine
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Sports ‘n Spokes—wheelchair sports magazine published by Paralyzed Veterans of America.
- SCI Update—the newsletter of the Northwest Regional Spinal Cord Injury System
Medical complications of SCI
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Staying Healthy After a Spinal Cord Injury—patient educaion pamphlet series about bladder and bowel management, skin care, pressure ulcers, pain and depression.
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Medical complications information from the SCI Information Network
SCI research
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National Institute of Neurological Disorders and Strokes - research on neurological disorders and diseases.
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Northwest Regional Spinal Cord Injury System (NRSCIS) - at the University of Washington.
SCI Sites written and maintained by individuals with SCI
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Spinal Cord Injury Resources (Jim Lubin)
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Vent Users Support Page (Jim Lubin)
Listservs for individuals with SCI
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SCI Mailing List: There is an Internet mailing list on the topic of spinal cord injury, called SCIPIN-L List. To join it, send a message to listserv@health.state.ny.us with only the words "subscribe SCIPIN-L" in the body of the message. (After you join, send all messages to the list to scipin-l@health.state.ny.us, NOT to the address above.)
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Quadriplegic (Tetraplegic) Discussion Group: This Internet mailing list, called QUAD-LIST, is a forum for quadriplegics (tetraplegics) to communicate with one another. To subscribe to the list, follow the instructions found on Jim Lubin's QUAD-LIST web page.
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Vent Users Mailing List: This Internet mailing list is a forum where ventilator users can communicate with one another. To join, fill out the online form at the website of list owner Jim Lubin.
International SCI Sites
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Spinal Injuries Association (United Kingdom)
- Spinal Cord Research Centre (University of Manitoba, Winnipeg, Manitoba, Canada)
Disability Web sites
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Mobilewomen.org - online magazine for women in wheelchairs.
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Proyecto Vision - a bilingual Web site for Latinos with disabilities.
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The Disability Resources Monthly (DRM) WebWatcher SCI Information
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Through the Looking Glass - for families in which a child or parent has a disability.
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WheelchairNet - all about wheelchairs.
Other resources
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How to find a physician specializing in Physical Medicine and Rehabilitation (PM&R).
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Alliance of People with Disabilities in Washington State: http://www.disabilitypride.org/index.htm
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Independent Living Centers in Washington State: http://www.disabilitypride.org/cils_wa.htm